Skip to main content

Autonomy, Community, and Freedom



I just had to read the article when it came with such a heartfelt recommendation:

This was a beautiful article - I had no idea Colin Farrell had a disabled child nor that he was involved in advocacy. 

His quest to create a foundation that allows disabled kids to age into good community care (instead of aging OUT of supports) is so important. - - Kelly @broadwaybabyto

And here’s the article:

‘He's cheeky, bold and bright,’ – Colin Farrell opens up about his son’s Angelman syndrome as he turns 21, Esther McCarthy, Irish Independent 

Of particular interest to me is this section in which Farrell describes his son’s readiness to lead a fuller and more independent life while acknowledging that community programs to support that are rare if not nonexistent in many locations.

James’s parents see him as a young man with his own life who wants to be out and about. But they are aware that this will bring challenges, as James’s condition means that he needs supported care. “His mother and I are trying to think about the next stage of his life. He has earned autonomy, and he has earned having a greater sense of community and a greater sense of freedom,” says Colin. “He shows us that, and he loves people, and he wants to be active in the community and all, but there's just very, very little there.”

As the family seeks suitable and supported independent living for James, they have become aware of the dearth of such home care for young adults with intellectual disabilities. Inspired by James and out of a desire to do what he can to better the lives of the many other families facing similar challenges, the actor has decided to establish The Colin Farrell Foundation.

Again, Kelly’s recommendation of the article contains a precious nugget of truth which may be invisible to those who don’t have direct personal experience: there should be a far greater investment in initiatives that “…allow disabled kids to age into good community care (instead of aging OUT of supports).”

That brings me to Howard County and the work of Donna Pidel and Adebayo Sodunke of  The Difference 2-17 . Inspired by Pidel’s 36 year old son Alexander, who was diagnosed with autism at the age of three, The Difference 2-17 describes their mission this way: Enrichment & Community Development Services for Autism and Neurodiversity for Adults 18 and older.

“Aging into good community care.” That’s what this is. The Difference 2-17 provides a safe and supportive environment for young adults to develop skills that foster wellbeing and independence. The image below may feel like just so many words to you, but it’s linked with opportunities and experiences intended to enhance quality of life. Look at the photos on their Facebook page to see what I mean.




The Difference 2-17 opened their first location in Mount Airy in 2021, and has since expanded to Frederick and Westminster.



Next up: Howard County. They will be opening a location in Ellicott City in September.




In the article in The Irish Independent, Actor Colin Farrell shares his vision for his foundation:

The ultimate goal would be, within a couple of years, to end up in Washington and get a hearing and try and get some money allocated for exactly what we're talking about - not summer camps, but for community centres where parents can bring their young adults, and also for more independent living that will obviously have around-the-clock support and care, and what that's going to look like. So there's loads to do.

Yes, there’s loads to do to create the kind of network of excellent community care for young adults aging out of traditional birth-21 programs. I’m excited to see the local progress of The Difference 2-17 in addressing those needs. 

You can learn more at their website, and on Facebook.



Village Green/Town² Comments

Comments

Popular posts from this blog

Teacher Gifts

Today is the last day of school before the Winter Break. It’s a good time to remember the far-reaching nature of our public school system. You may not have children. You may have sent your children to independent schools. It matters not. You will be impacted one way or another. Yesterday I read a long thread on Facebook about several waves of illness in the schools right now. There’s influenza A and norovirus, I believe. And of course there’s COVID. Apparently in some individual schools the rate of illness is high enough for school admin to notify parents.  When I was little the acceptable holiday gift for a teacher was one of those lovely floral handkerchief squares. (I don’t know what it was for male teachers. They were rare in my elementary years.) These days the range of teacher gifts is wider and I have fond memories of Target gift cards which I have written about before. I think it’s safe to say that giving one’s teacher Influenza, norovirus, or COVID is not the ideal holiday...

F ³: We Are Not Entitled

  A college student went missing. His family and friends were distraught. The community was encouraged to be on the lookout and spread the word.  Days passed.  They must have been agonizing days for those who cared about the missing student. Thoughts that foul play had been involved cannot have been far from their thoughts.  Then, at last, the student was found. Alive. The news was shared with the public.  So. Much. Relief. A family had been reunited with their child. Even though we know that life is complicated, I think it is okay to accept this as a happy ending and leave it at that.  But the world of social media says no. For every expression of joy at the news came questions and even judgement. It became clear to me that some folks felt entitled to an explanation. They wanted the backstory. It’s as though they felt that, by enlisting the help of the public on social media, the authorities now owed them all the details. Television dramas often weave curr...

Separate and Unequal

  Remember “Separate but equal”? Remember how that really meant that Black schools languished in  broken-down buildings without adequate heat or toilet facilities, with cast-off, ragged learning materials, underfunded and largely ignored? The Supreme Court struck that down in 1954. The evidence was clear that separate was not equal. Plessy v Ferguson had led to - - no, endorsed - - deeply unequal schooling and opportunities. We tend to think of Brown v Board as being purely about racial integration. It was not.  It was about the logical consequences of segregation. And they were not, not, not equal. The ruling in 1954 didn’t transform public education for non-whites into a land of milk and honey by any means. But it articulated some essential truths in a way that made including everyone a legal precedent which could be relied upon and built upon. It was better than what came before it but it rested upon unsteady ground. It did not necessarily change the hearts or minds ...